Blogs Personal Journal My story: Male breast cancer

My story: Male breast cancer

Written by  Thomas Sword
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Hello. My name is Thomas and I am a 55 year old male who required a bi-literal mastectomy approximately 5 years ago. I was on Tamoxifen, went through chemotherapy, severe depression, post traumatic stress, issues with body image, post-mastectomy pain syndrome and chemo-brain where I was becoming so forgetful that I first thought I had acquired Alzheimer's.

I was able to deal the best I could with this, but the worst part was the gender bias that I endured and still continue to endure. From finding a lump and having my doctors office tell me over the phone (without seeing me) to "come in 3 weeks to have it checked out" (I refused and demanded to be seen that day), to my boss demanding me to meet my work quotas as I was a "man and needed to stop being a baby, and wanting to be treated like a 'woman;'" to workers compensation calling me the day after surgery to say that as a man I only needed 5 days rest (I still had 2 drainage tubes); to my insurance company declining breast reconstruction because I was "not a woman;" to a doctor declining a counseling referral because "I was not a woman and did not need my breasts anyway;" to a college professor stating to me when I requested some assistance with classes due to a mastectomy- "I am sorry about the breast cancer. I really did not know you were a woman. I always thought you were a man."

bald-thomasSupport for males with breast cancer? No. Support from doctors? No again. Support from Susan Komen Foundation? No.

I cannot get people to understand how we force men with breast cancer into the "shadow of pink" because we become insignificant. But, men still die each year of breast cancer while suffering from depression as well, as potential support is little or none due to lack of education and interest.

Breast cancer does not discriminate. Unfortunately our society does.

While we see photos of men at the beach, in movies and commercials, body building competitions, and in calendars showing their 'manly' chests, there are still men who die from having been diagnosed or misdiagnosed with breast cancer, or should we say 'chest or pec cancer' as the word breast in itself denotes femininity.

Please help me educate people on the topic of male breast cancer. Breast cancer is NOT a woman's disease. It is a peoples disease. Even though I was diagnosed 5 years ago it appears that nothing has changed in regards to gender bias. I continue to encounter gender bias to this day.

Thank you,
Thomas
Birdsboro, PA

comments  

 
#9 Cheri Ambrose 2013-06-25 21:15
Hi Thomas, Thank you very much for posting your story. I agree that men with breast cancer have suffered for far too long in The Shadow of Pink. That is exactly why I helped to start TheBlueWave.org. I am working to bring about a change here in the US by appealing to the Senators of each state to back a bill proclaiming the 3rd week of October, Male Breast Cancer Awareness Week. My goal is to bring about awareness and a change in the thinking of all men and women. Awareness saves lives. Inspect the Pecs!
 
 
#8 Thomas 2013-06-02 02:35
Thank you so much Laura, Ann and Rob! I am still not over having both breast removed. Then I got skin cancer. After chemo I was told that side effects would not last. I am not so sure. My body temperature is still out of whack. I need to use a thermometer sometimes to check my tem because it could be 90 degrees and I have a blank, long shirt, afghan and a hat on. And I am still freezing like I was in a walk-in refrigerator. Also, after chemo I starting getting horrible psoriasis. I am on Enbrel now for external and internal psoriasis.
 
 
#7 Laura Wells 2013-05-31 20:32
I am glad you are sharing your story. I am starting a new non-profit org. for metastatic breast cancer - because that's what I have, and even though it may not apply to you (hopefully), I am including men in my goals of aiding mets patients. Men are being afflicted with breast cancer at alarming rates. In my new brochure - one line says - "For the man without a support group, because no one understands his disease." He has male metastatic breast cancer MMBC. SGK does have a new brochure about men getting breast cancer, so it's a start. I hope you have a long time of recovery. Blessings to you.
Laura Wells - STAGE IV LIFE Metastatic Breast Cancer Foundation.
 
 
#6 Thomas 2013-05-31 01:25
Quoting Ann:
Thank you for sharing your story. When I got breast cancer, I didn't know men could also get it. Once I learned, men can & do get breast cancer, I shared this information with all the men in my family. No man should go through this rough thing without support. You could Google the Internet, to look for men with breast cancer support groups. No man should ever have to deal with what you dealt with. Prayers & good wishes.

Thanks so much! It is interesting how doctors routine do the 'turn and cough' thing for men, but NEVER do a 'pec check'.
 
 
#5 HIS Breast Cancer 2013-05-30 11:45
The attached brochure will assist men on how to perform a self check breast exam. This is so important since no one else is looking/checking. Share with your physician's so they make this a part of their male physical each year. http://hisbreastcancer .org/male-breast-cancer.pdf
Available at HIS Breast Cancer Awareness;http: //hisbreastcancer .org/
 
 
#4 Ann 2013-05-30 11:41
Thank you for sharing your story. When I got breast cancer, I didn't know men could also get it. Once I learned, men can & do get breast cancer, I shared this information with all the men in my family. No man should go through this rough thing without support. You could Google the Internet, to look for men with breast cancer support groups. No man should ever have to deal with what you dealt with. Prayers & good wishes.
 
 
#3 HIS Breast Cancer 2013-05-30 11:17
Men- We are a non profit organization to assist with Male Breast Cancer. We are here to offer Education, Awareness and Support. We are a sister and brother who have both been diagnosed with breast cancer and both carry the BRCA gene mutation. Please visit our web site for more assistance. We post personal stories and would like to share yours with others. We look forward to hearing from you. HIS Breast Cancer Awareness, http://hisbreastcancer.org/
 
 
#2 Thomas 2013-05-29 23:25
Hello Bob!
I tried to send you an email but somehow it was returned. I do want to reach out to you. As I have been told, a chain is only as strong as it's weakest link. I want to assist in empowering you to be stronger. Let's try to connect. I am sure that we can strengthen each other.
 
 
#1 Bob DeVito 2013-05-29 11:42
Hi Thomas...
I have a similar story. I was lost in a sea of pink. I'm am trying to connect with other male breast cancer survivors regarding projects to get the word out. If you (or any one else) is reading this....plesae reach out to me at mymalebreastcac nerjourney@gmai l.com
 

 

 

 

 

 

 

 

 

 

 

 

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